Sp-foundation.org
Title
SPF - Spastic Paraplegia Foundation Home Page
Description
The Spastic Paraplegia Foundation, Inc. (SPF) is a national, not-for-profit, voluntary organization founded in February, 2002. It is the only organization in the Americas dedicated to two groups of rare, neurodegenerative disorders called Primary Lateral Sclerosis (PLS) and Hereditary Spastic Paraplegia (HSP). These upper motor neuron disorders are thought to affect some 20,000 children and adults across the United States.
The SPF is dedicated to discovering effective treatments and cures for these conditions. It also serves as the primary source of information on the disorders and seeks to enhance awareness and establish networking and support programs for the patient community.
The Foundation's policies and activities are overseen by a Board of Directors comprised of business and community leaders. The Scientific Advisor is a world-renowned investigator who also oversees the country's largest clinic for people with HSP or PLS. A Scientific Advisory Board (SAB) consists of acknowledged leaders in the field of neurology who provide high-level medical and scientific guidance and make recommendations for Grant Awards. Click here for lists of the SPF Board of Directors, Medical Advisor and Scientific Advisory Board.
Languages
English
Contact
- Spastic Paraplegia Foundation
-
- Chelmsford MA
- United States 01824
-
- +1.8013667348
Logos
Additional Information
Related Domains
- Conditions And Diseases
- Fsp
- Familial Spastic Paraparesis
- Familial Spastic Paraplegia
- Genetic Disorders
- Hsp
- Health
- Hereditary Spastic Paraparesis
- Hereditary Spastic Paraplegia
- Pls
- Primary Lateral Sclerosis
- Sp Foundation
- Spastic Parapalegia Foundation
- Strumpell Lorrain
- Upper Motor Neuron Disorder
- Conditions and Diseases
- FSP
- HSP
- PLS
- SP-Foundation