MdDa-Australia.org
Title
Metabolic Dietary Disorders Association, Australia.
Description
The MDDA was founded in 1996 by parent of 2 PKU children and current Executive Director, Kerri Carboon. Over 100 people attended the initial meeting in Victoria representing 14 disorders, most of which required medically controlled diet. Since 1997, membership has grown across Australia and internationally to represent 16 disorders, currently most require a low-protein diet.
The MDDA's primary focus is on helping families maintain the complex diet and treatment required for the affected individual. We aim to provide a comprehensive resource of information, support and whatever assistance may be necessary so families can make informed choices about their care.
In 2000, Kerri and Neill Carboon were successful in obtaining monies from the Australian Society for Inborn Errors of Metabolism (ASIEM), Nutricia and Micromass to attend the PKU and Allied Disorders International Conference held in America.
Additional Information
Related Domains
- 3 Methylcrotonyl Co A Carboxylase
- Aciduria
- Acyl
- Ag
- Ald
- Arginase
- Argininosuccinase Acid Lyase
- Argininosuccinic Acid Synthetase
- Asd
- Australia
- Carbamyl Phosphate Synthetase
- Chain
- Coa
- Coenzyme
- Conditions And Diseases
- Cps
- Creatine Supply
- Defect
- Deficiency
- Dehydrogenase
- Galactosaemia
- Genetic Disorders
- Glutaric Aciduria
- Health
- Hmg
- Homocystinuria
- Hydroxy
- Inborn Errors Of Metabolism
- Isovaleric Acidemia
- Iva
- Low Protein Diets
- Lyase
- Maple Syrup Urine Disease
- Maternal Pku
- Mcad
- Medium
- Metabolic Dietary Disorders
- Metabolic Disorders
- Methylglutaryl
- Methylmalonic Acidemia
- N Acetylglutamate Synthetase
- Nags
- Newborn Screening
- Organic Acidemia
- Organizations
- Ornithine Transcarbamylase
- Otc
- Pa
- Parents
- Phenylketonuria
- Pku
- Propionic Acidemia
- Protein Metabolism
- Rare Disorder
- Self Help
- Tyrosinaemia
- Urea Cycle Disorders
- 3
- 3 Methylcrotonyl CoA Carboxylase
- A
- Conditions and Diseases
- N-acetylglutamate Synthetase
- Nutrition and Metabolism Disorders