Marfan.org
Title
The National Marfan Foundation: Marfan Syndrome information - causes, treatment, support, management and research
Description
The NMF is the primary source of accurate and up to date information on the Marfan syndrome. It was founded in 1981 by a handful of individuals seeking help to understand the complex condition affecting themselves and their loved ones.
Over the past twenty years, the Foundation has grown as it has increased its education, support and research programs. Professional staffers oversee the Information Resource Center, which features personalized service through a toll-free number (800-8-MARFAN) and the Internet; medical education and consumer awareness programs; and a research grant program that has provided nearly $2 million in grants since its inception less than 15 years ago. In 2004, $800,000 will be awarded in research grants.
Together with our National Volunteer Network, comprised of Chapters, Support Groups and other local members, we disseminate accurate information, provide support and foster research nationwide, as well as to the international Marfan community.
Languages
English
Contact
- National Marfan Foundation
-
- Port Washington NY
- United States 11050
-
- +1.51688387
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Additional Information
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