Ipopi.org
Title
IPOPI - International Patient Organisation for Primary Immunodeficiencies
Description
The International Patient Organisation for Primary Immunodeficiencies (IPOPI) came into being as a result of an initial meeting in Oxford, UK, in September 1990, when an interim organising committee was established and a further meeting two years later in Lugano, Switzerland, when IPOPI was formally established.
Prominent among those responsible for the creation of this organisation were Bob LeBien from the IDF in the USA; Dr Helen Chapel who is a leading UK clinical immunologist; Martin Gatehouse a parent from Switzerland; Robin Fanshawe and Fiona Sandford from the PiA in the UK and Maj-Lis Helstrom from Sweden.
It is also essential to record IPOPI’s indebtedness to ESID (the European Society for Immune Deficiency), the organisation for clinical immunologists in Europe under whose aegis IPOPI meets every two years. IPOPI has also enjoyed the privilege of a wonderful and close working relationship with INGID (the International Nurses Group for Immune Deficiency). To both those organisations IPOPI record their thanks for their nurture and support.
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